People with Down syndrome who take part in LIFE-DSR are known as study “participants,” and their caregivers/family members are called study “partners.”
They will be asked to complete three or more visits to their clinic site over two years.
Participants undergo a “cognitive assessment,” to help the researchers measure things that can’t be measured with a scale or a tape measure, like memory, language, and the ability to recognize objects.
Participants may be asked to participate in additional tests, such as: MRI, PET scan, a collection of spinal fluid, or a goals assessment.
Participants and their study partner will have many opportunities to ask questions before giving consent and joining the study.
Consider joining a study?