Research Publications

Caregiver knowledge of obstructive sleep apnea in Down syndrome

Author: Sandra Gimenez, et al. Year of Publication: 2022 Abstract Background: Down syndrome (DS) population has…

CapetivateDecember 13, 2023

Opportunities, Barriers, and Recommendations in Down Syndrome Research

Author: James Hendrix, et al.Year of Publication: 2020 Abstract BACKGROUND: Recent advances in medical care…

CapetivateDecember 13, 2023

Research Publications

Parental perspectives on research for Down syndrome

Author: Amanda Nicole White, et al.Year of Publication: 2021 Abstract Background: Down syndrome is the…

CapetivateDecember 13, 2023

Research Publications

Caregivers evaluate independence in individuals with Down syndrome

Author: Stephanie L. Santoro, et al.Year of Publication: 2022 Abstract Independence is both a sense…

CapetivateDecember 13, 2023

Research Publications

Healthcare Experiences of Patients with Down Syndrome Who Are Black, African American, of African Descent, or of Mixed Race

Author: Kavita Krell, et al.Year of Publication: 2022 Abstract Scant research has explored the healthcare…

CapetivateDecember 13, 2023

Research Publications

Caregivers’ Perception of Adults with Down Syndrome Willingness to Participate in Research

Author: Nichole Kyprianou, et al.Year of Publication: 2022 Abstract Background Historically, individuals with Down syndrome…

CapetivateDecember 13, 2023

Research Publications

Conducting clinical trials in persons with Down syndrome: summary from the NIH INCLUDE Down syndrome clinical trials readiness working group

Author: Nicole Baumer, et al. Year of Publication: 2022 Abstract The recent National Institute of…

CapetivateDecember 13, 2023

Research Publications

Diagnosing Hope: The New Era of Alzheimer’s Disease Treatment Hinges on Innovations in Diagnostics

Author: Network for Excellence in Health InnovationYear of Publication: 2023 Abstract A new era has…

CapetivateDecember 13, 2023

Research Publications

Weight management recommendations for youth with Down syndrome: Expert recommendations

Author: Lauren T. Ptomey, et al. Year of Publication: 2023 Abstract Youth with Down syndrome…

CapetivateDecember 13, 2023

Research Publications

A feasibility study demonstrating that independence, quality of life, and adaptive behavioral skills can improve in children with Down syndrome after using assistive technology

Author: Kaylin White, et al.Year of Publication: 2023 Abstract Enhancing independence and quality of life…

CapetivateDecember 13, 2023

Research Publications

Caregiver knowledge of obstructive sleep apnea in Down syndrome

Opportunities, Barriers, and Recommendations in Down Syndrome Research

Parental perspectives on research for Down syndrome

Caregivers evaluate independence in individuals with Down syndrome

Healthcare Experiences of Patients with Down Syndrome Who Are Black, African American, of African Descent, or of Mixed Race

Caregivers’ Perception of Adults with Down Syndrome Willingness to Participate in Research

Conducting clinical trials in persons with Down syndrome: summary from the NIH INCLUDE Down syndrome clinical trials readiness working group

Diagnosing Hope: The New Era of Alzheimer’s Disease Treatment Hinges on Innovations in Diagnostics

Weight management recommendations for youth with Down syndrome: Expert recommendations

A feasibility study demonstrating that independence, quality of life, and adaptive behavioral skills can improve in children with Down syndrome after using assistive technology

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